Navigating the Wait for an Autism Diagnosis: Tips for Parents and Carers
- stephanie
- 5 hours ago
- 2 min read
Waiting for an autism diagnosis for your child can feel like a long and uncertain journey. The time between seeking help and receiving a diagnosis often brings a mix of emotions—anxiety, hope, frustration, and sometimes isolation. If you have a child over 5 years old and are currently on this path, you are not alone. Many parents and carers face similar challenges, and there are ways to support yourself and your family during this period.
Understanding the Waiting Period
The process of getting an autism diagnosis can take some time. While waiting, it’s common to feel overwhelmed by uncertainty and worry about your child’s future.
Knowing what to expect can help reduce stress. The waiting period is a time for gathering information, observing your child’s strengths and challenges, and preparing for the next steps. It’s also an opportunity to connect with others who understand your experience.
How to Support Your Child While You Wait
Even without a formal diagnosis, you can take steps to support your child’s development and well-being:
Create a predictable routine. Children with autism often feel more comfortable with clear, consistent daily schedules. Use visual timetables or simple charts to help your child understand what to expect.
Focus on communication. Encourage your child’s communication skills, whether through speech, gestures, or alternative methods like picture cards. Celebrate small progress and be patient.
Manage sensory needs. Notice if your child is sensitive to sounds, lights, textures, or smells. Adjust the environment to reduce discomfort, such as using noise-cancelling headphones or soft lighting.
Encourage social interaction. Support your child in engaging with peers in ways that feel comfortable. This might include small group activities or playdates with familiar children.
Promote emotional regulation. Help your child recognise and express feelings. Simple breathing exercises, quiet spaces, or sensory toys can assist in calming down during stressful moments.
How the Waiting Well Course Can Help
If you are looking for support during this time, the Waiting Well course offered by Hillingdon Autistic Care & Support (HACS) is designed specifically for parents and carers like you. Starting January 2026, this 6-week programme provides:
A supportive environment to share your experiences
Practical information about autism and the diagnosis process
Strategies to reduce stress and build confidence
Opportunities to connect with others who understand your journey
Courses run from January to May 2026. You can join by scanning the QR code or contacting HACS directly.